This aphorism is useful in many settings, including when talking about person-centred care (PCC) and about patient engagement, without which PCC will never achieve its promise.  It’s relevant because when communities and citizens continue to accept non-person-centred healthcare, they are effectively promoting non-engagement. The following anecdotes are revealing. I talked this week with a woman who is fearful about her next doctor visit. She knows he will press

A Declaration of Health Data Rights, endorsed by ICN and other organizations, has been published for the first time in Canada offering citizens a much needed guideline to their rights regarding health data and their control of it. One of ICN’s Board members, Alana Kitchen, is part of The Data Working Group, a small group of volunteers from diverse patient organizations and citizen groups, most with lived experience,