1. Forming the Task Force – IMAGINE Citizens Collaborating for Health started discussions with the Strategic Clinical Networks™ in late 2015. By November 2016, a Task Force was in place with finalized terms of reference. Half of the task force members are citizens, volunteer patient and family advisors, or patient and community engagement researchers. The task force is also composed of members from the Strategy for Patient Oriented Research (Patient Engagement Platform); the Health Quality Council of Alberta; Alberta Health Advocates; the Ward of the 21st Century; MyHealth Alberta; and Alberta Health Services.
2. Creating a framework for the content that outlines the necessary elements recommended by the task force and the steps required. The identified content themes are:
a. Understanding my health-care ecosystem
b. Understanding my health-care navigation
c. Understanding my health-care journey
d. Understanding my rights and responsibilities
3. Defining the content with citizens, and then writing and piloting the content
a. Citizen Focus Groups were conducted for input on content and methods of delivery. Two focus groups were held. The first was across the province on Jan. 30, 2017, by Telehealth (online), with a total of 41 participants. The second was an in-person meeting on Feb. 2, 2017, with a group of 12 clients at The Alex’s youth and family clinics in Calgary. Four themes came out of this work.
b. Content Support Team members, who are citizen experts, are working with the recommended themes. With support from a writer and designer, they created the content. MyHealth Alberta content and user-experience staff were assigned to work with HC101. We are ready to test the first theme with the public before we move on with further content development.
c. Create, pilot and refine. We finalized Module 1 content with citizens’ input in October 2017. We looked to Citizen Focus Group and Content Support Team members to be part of the testing of the content developed. We also asked the Patient Engagement Reference Group members of the Strategic Clinical Networks™, and members of Alberta’s Patient and Family Advisory Group to review. Health-care researchers interested in collective impact of patient engagement work through the Strategy for Patient Oriented Research, and members of PovertyTalks! were also consulted. We asked for guidance from the Albertans, patient- and family-advisers, and/or patient-engagement researchers who had voiced the need or shaped early directions for HC101.
d. Applying design. The goal is to apply design thinking to ensure the content can be found on MyHealth.Alberta.ca, is compatible with mobile devices, and is as accessible to as many Albertans as possible.
e. Social marketing, advertising and social media plans. From September 2017 to April 2018, HC101 partnered with students of Sameer Desphande in the Dhillon School of Business at the University of Lethbridge to develop these plans. We are working with our co-design team to finalize and implement promotion plans to build awareness of Healthcare Basics for Albertans.
f. Cultural accessibility. Healthcare 101 is in discussions with organizations with expertise in cultural broker services to ensure the Module 1 content is meaningful to immigrant, refugee and ethno-cultural community members in Alberta.
4. The second module. Phase 2 of Healthcare 101 will tackle the theme of Finding My Way. Terms of Reference will be updated, and we will build on what we have learned in developing Module 1.
5. With experienced gained and with your help, we will develop themes 3 and 4.