Current project status
1. Forming the Task Force – IMAGINE Citizens Collaborating for Health started discussions with the Strategic Clinical Networks™ in late 2015. By November 2016, a Task Force with finalized terms of reference was in place. Half of the task force members are citizens, volunteer Patient and Family Advisors, or Patient and Community Engagement researchers. The Task Force is also comprised of members from the Strategy for Patient Oriented Research (Patient Engagement Platform); The Health Quality Council of Alberta; Alberta Health Advocates; The Ward of the 21st Century; MyHealth Alberta; and Alberta Health Services.
2. Creating a framework for the content that outlines all the necessary elements recommended by the Task Force, and the steps required for the work to be successful. The content themes that have been identified include:
a. Understanding my health care ecosystem
b. Understanding my health care navigation
c. Understanding my health care journey
d. Understanding my rights and responsibilities
3. Defining the content with citizens, and then writing and piloting the content
a. Citizen Focus Groups were conducted to seek recommendations for content and methods of delivery. Two focus groups were held. The first was across the province on January 30, 2017, by Telehealth (online), with a total of 41 participants. The second one was an in-person meeting on February 2, 2017, with a group of 12 clients at The Alex’s youth and family clinics in Calgary. The 4 themes came out of this work. A big thank you to all who participated in this valuable work.
b. Content Support Team members, who are citizen experts, are working with the recommended themes. With support from a writer and designer, they will create the actual content. MyHealth Alberta content and user-experience staff are been assigned to work with HC101. Meetings are well underway.This is where most of the work is taking place. We are now ready to test the first theme with the public before we move on with further content development.
c. Create, pilot and refine We finalized Module 1 content with citizens’ input at the end of October 2017. We looked to Citizen Focus Group and Content Support Team members to be part of the testing of the content developed.We also asked the Patient Engagement Reference Group members of the Strategic Clinical Networks™, and members of Alberta’s Patient and Family Advisory Group to review. Healthcare researchers interested in collective impact of patient engagement work through the Strategy for Patient Oriented Research, and members of Poverty Talks! were also consulted on their advice on moving forward. We asked for guidance from those Albertans, patient- and family-advisors, and/or patient-engagement researchers who originally voiced the need or shaped early directions for HC101.
d. Now that the co-created content is being finalized, the next phase is how to apply design thinking to make sure that the content can be searchable on MyHealth.Alberta.ca. Also, make the content is as accessible to as many Albertans as possible. In the meantime, we need your input to ensure that Module 1 information is meaningful to you.
4. We’ll use what we are learning and with your help, continue on with Themes 2, 3 and 4.